As part of our commitment to remain open and honest throughout the duration of the Review, we try to provide updates to all families within the Review, as often and as sensitively, as we can.
Please read the following update from Donna Ockenden, Chair of the Review, about the Review’s progress and what this means for families that are part of the Review.
As of today, 2,032 families have joined the Review. To be included within the Review, a family must meet the Terms of Reference for the Review. The way in which we receive information about a family to be included in the Review is either through direct contact from the family; and/or, the Review team receive information from the Trust through the ‘open book’ process. The ‘open book’ process, is the term used to describe the way in which the Trust look through their records to see if any cases meet the Terms of Reference of the Review.
We have been working with Anthony May, Chief Executive of Nottingham University Hospitals NHS Trust, and his colleagues to ensure that all appropriate cases are included in the Independent Review. This work has identified some discrepancies. These discrepancies are cases that should have been provided to the Review, but were not. The discrepancies relate to the following categories:
- Babies who have died
- Babies with brain injury
- Mothers who have died
We would like to stress that this has arisen from a genuine misunderstanding. As a matter of urgency, these cases will be sent to the Review Team. This means they will be reviewed by our team, we can offer support to these families and the Trust will learn from the experiences of these cases.
As a result, the number of families that are to be included in the Review will significantly increase; this is expected to be up to 300 new families. We expect that the numbers of families in the Review (when the Review closes to new cases at the end of May 2025) to be about 2,500 families.
Families will remember that we have always said we would do our very best to publish our report at the end of September 2025. When we made this commitment, we had approximately 1,700 families in the Review. Even without the new families joining the Review the number of families has increased as of today to 2,032. With the new families joining the Review we are letting you know we will have to delay publication of the report until June 2026, with family feedback to follow after publication. This will give the Review team the opportunity to provide support to all families, and to allow for all cases to be reviewed to the highest professional standards that all of us expect. The Terms of Reference will be updated to reflect the new publication date and the date the Review closes to new cases.
We recognise that this update may be difficult for some families to hear, so if you feel as though you need extra support at this time please contact the Review team, or the Family Psychological Support Service (FPSS). We are here to help you wherever we can. Please remember that you can contact the Family Psychological Support Service by:
Phone: 0115 200 1000
Email: enquiries@fpssnottingham.co.uk
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